The ICF as reference for the evaluation of intervention studies in dementia
(ICF - Effect)

The project named "Die ICF als Referenzrahmen zur Bewertung von Effektivenessstudien bei demenziellen Erkrankungen - ICF Effekt" ("The ICF as reference for the evaluation of intervention studies in dementia - ICFeffect") started in summer 2008. ICF-Effect is a cooperation project between the Department of Primary Medical Care at the University Medical Hospital Hamburg-Eppendorf and our ICF Research Branch. It is funded by the Federal Ministry of Health within the national program "Leuchtturmprojekt Demenz".

The aim of this study is to analyze to what extent new instruments are necessary to detect patients' and caregivers' relevant endpoints in intervention studies regarding persons with dementia of the Alzheimer's type (PwADT). In order to reach this goal the following steps are being taken:

Systematic Literature Review
The databases Medline, Embase, Psycinfo, Cinahl and Pedro are being searched to identify pharmacological and non-pharmacological intervention studies published in the last 10 years. The about 10,000 references are being screened for inclusion according to predefined criteria.


Personal Interviews
Up to 20 semi-structured face-to-face interviews are being performed with PwDAT in the first stage of the disease. Up to 60 primary caregivers of PwDAT in the first and advanced stages of the disease will also be interviewed. In the focus are problems of daily living and challenges caused by the illness.


Linking into the ICF

Goals and outcome measures of intervention studies identified in the literature review as well as problems and challenges experienced by PwDAT and caregivers of PwDAT identified in the personal interviews will be linked into the ICF and compared.

The results of this comparison will be presented in a database at the ICF Research Branch website. The project coordinators in Munich are Elisabeth Linseisen and Eva Esteban and the coordinator in Hamburg is Anke Beckmann.


For more information contact:Elisabeth Linseisen

Publications

 

ICF Research Branch of WHO CC F IC (DIMDI)
Institute for Health and Rehabilitation Sciences, Ludwig-Maximilian University
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