Development of the ICF Core Sets for Lupus Erythematodes (SLE) and Systemic Sclerosis (SSc)

Both Systemic Lupus Erythematodes (SLE) and Systemic Sclerosis (SSc) are rheumatic diseases which cause various problems of functioning in daily life. In order to comprehensively map functioning in these patients, we have embarked on the international project for developing ICF Core Sets for SLE and SSc. In line with the already existing ICF Core Sets for chronic conditions, this development will include two versions: The Brief ICF Core Sets for both SLE and SSc will be a very focused list of categories essential for SLE and SSc clinical trials. The Comprehensive ICF Core Set will be much broader and useful for guiding multidisciplinary assessment in patients with SLE and SSc.
Again, the standard procedure for the development of ICF Core Sets will be folloed.
The preparatory phase of the SLE project will be partially funded by the so-called 'Bürgermeister' grant from the city of Vienna, Austria.
Additional grant submissions for the preparatory phase of the SSc project in cooperation with Professor Murray Baron from Montreal, Canada, are currently in preparation.
The development of the SLE and SSc ICF Core Sets is designed to be an inclusive, open, world-wide process. We, therefore, invite both SLE and SSc clinical experts and SLE patients to actively participate.
If you want to participate, please, contact us at the Vienna Medical University, Division of Rheumatology: martin.aringer@meduniwien.ac.at or tanja.stamm@meduniwien.ac.at